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My Story
I was born at 5.23am on Saturday 6th August 2005 by emergency caesarian section due to fetal bradycardia (very slow heartbeat).
When I was born, I was not breathing and had only a faint heartbeat so I was resuscitated.
I was without oxygen for seventeen minutes and was extremely poorly and had started having fits almost immediately. Because of this, the doctors were sure that I had suffered brain damage and so asked my Mummy and Daddy if I could be part of something called the TOBY trial (for more information, see http://www.npeu.ox.ac.uk/toby/). I was accepted onto the trial and had to be transferred by ambulance to the Queen Charlotte and Chelsea Hospital in Hammersmith where I stayed for eight days before coming back to Basildon. I was given my prognosis at six days old: *'He won't walk.' *'He won't talk.' *'He won't hold his head.' *He'll have a mental age of around two years old.' *If he doesn't resolve his feeding issues, he'll be dead in 3 to 5 years.' My diagnosis is very big because the older I get, the more apparent things are. At the moment I have: *Hypoxic Ischaemic Encephalopathy - brain damage caused by lack of oxygen and blood flow *Seizure disorder - epilepsy *Gastro-oesphageal reflux disorder *Right uretic reflux - kidney reflux *Moderate bilateral hearing loss *Eczema *Four limb mixed cerebral palsy - quadraplegia *Moderate to severe dysphasia - cannot swallow correctly *Laryngeal malaecia - floppy larynx |